Since 2017, ACCKT has been committed to providing a dedicated community space that provides peer support, collaboration and research for patients diagnosed with pediatric onset adenoid cystic carcinoma (ACC) and their families.
ACCelerating hope through community, care + research
RESOURCES
SUPPORT
FUNDRAISING
RESEARCH
FIVE
That’s how few new diagnoses of pediatric onset adenoid cystic carcinoma ACCKT estimates are made each year in the United States.
Rare is an understatement for our population. But when it’s your family that is impacted, it doesn’t feel like it can be that rare.
The truth is, ACCKT has located over 50+ patients and their families throughout the world who were originally diagnosed with pediatric onset ACC between the ages of 0-20. Many are thriving decades after their original diagnosis.
Our goal has been to create a community for patients and their families to turn to as they navigate their ACC journey, as well as compiled and fund research that studies pediatric onset ACC, working towards finding better treatments and ultimately a cure for this relentless disease.
Learn more about pediatric ACC
2019 Fundraising Video Detailing 2018 Success + Future Plans.
Funding Groundbreaking Research into Pediatric Onset ACC
Since 2018, ACCKT has successfully raised over $100,000 through Cycle For Survival to initiate and continue to fund the first exclusive pediatric onset ACC research ever conducted through the Make-An-IMPACT program at Memorial Sloan Kettering Cancer Center in New York City, USA..
Collaborating Teams + Organizations
