Our patients and families come from all over the world including Asia, Africa, Europe and North America. To date, the majority of the patients that we've located are in the United States and are located in all corners of the country. We are a uniquely small and spread out population but have found tremendous comfort in knowing other's who have navigated a similar journey. Our hope in sharing our stories, is to inform and provide hope that patients and families are not alone, especially in the beginning stages of a pediatric ACC diagnosis.